BCAN's Patient Handbook - Bladder Cancer Basics for the Newly Diagnosed



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The Bladder Cancer Advocacy Network (BCAN) is proud to announce that we have been designated a Marine Corps Marathon (MCM) Charity Partner! BCAN has been allocated 25 guaranteed entries for the 38th Annual Marine Corps Marathon to be held on October 27, 2013; an event that sold out in 2 hours and 41 minutes in 2012.
  • We are looking at building “Team BCAN” to not only run in the event and raise awareness for bladder cancer but to raise needed funds for fostering research and patient education. According to the Marine Corps Marathon, there is not a required qualifying time to participate in the event, but all runners should maintain at least a 14 minute mile pace. In order to become a member of “Team BCAN” and officially have a slot in this year’s race, you must be registered through BCAN.
  • No federal or Marine Corps endorsement is implied.
  • If you are interested in becoming a member of BCAN’s team or have any questions, please contact Larry Rzepka, BCAN’s Executive Director, at lrzepka@bcan.org.
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    Urinary Diversion Q&As

    November 2010

    These Q&As are provided by three BCAN volunteers, Nancy Parrish, Karen Godfrey and Michael Jones, each of whom has had radical cystectomy surgery (to remove the bladder) and urinary reconstruction. These survivors describe day to day life with each of the three main types of urinary reconstruction– the Ileal Conduit, the Continent Cutaneous Pouch (also known as the Indiana Pouch) and the Neobladder.

    Ileal Conduit

    An ileal conduit is a system of urinary drainage where a short segment of the small intestine is used to drain urine to an opening (or stoma) at the surface of the abdomen. The urine is stored in a collecting pouch known as an ostomy bag. This is worn outside the body around the stoma 24 hours a day.

    Read some practical questions & answers from Nancy, a bladder cancer survivor with an Ileal Conduit.

    The Continent Cutaneous Pouch (CCP) or Indiana Pouch

    A CCP or Indiana Pouch is an internal system of urinary storage which a surgeon creates using the small and large intestines after surgical removal of the bladder. This pouch, (or reservoir) which is connected to the skin by a small stoma, is drained periodically by inserting a thin tube or catheter into the stoma. After the pouch is emptied the catheter is removed. No external bag is needed.

    Read some practical questions & answers from Karen, a bladder cancer survivor living with a CCP.

    Neobladder

    An orthotopic neobladder is an internal urinary diversion in which a segment of the small intestine is used to form a new (neo) reservoir for urine. The ureters are attached to the neobladder, as is the urethra, allowing voiding to be done via the natural course.

    Read some practical questions and answers from Michael, a bladder cancer survivor living with a neobladder.