Diagnosed in 2010 at age 65 withIII
Key message: Missed diagnosis, be your own advocate
My experience has taught me to be my own advocate. It began close to two years prior to my diagnosis. I started having to get up at night to go to the bathroom. It was once or twice a night at first, and then up to eight or more times. I had an appointment with my gynecologist for my annual Pap smear and check-up so I mentioned the problem I had with frequent urination at night. He said that it wasn’t unusual for women of my age (I was about 63 then) to have frequency and urgency problems and suggested I try Datril. It seemed to help at first but then the frequency returned. I began to have more frequent daytime urination and some burning at times. Several months later I was riding my bike, 60 miles that day training for a 100 mile ride, and had to stop every half hour to urinate. I finished the ride and went to an urgent care facility. The female doctor told me that my problem was that I was riding my bike too much. However, she put me on an antibiotic. I later found out that there nowas found in my . Over the course of the next 18 or so months I was treated for four or five urinary tract infections (UTIs) and had one episode of gross (visible blood in the ) after running a half marathon but it stopped after that one episode. I did not go to the ER because I was scheduled to have a two days later and figured I would bring it up then with my doctor’s nurse. I was told that it more than likely was “runner’s bladder” or exercise induced and to wait and see if it happened again. Well, it did a couple of times but only after long runs so I chalked it up to runner’s bladder.
Finally, I had a sinus infection and went to my primary care physician. He noted that my blood pressure was high, very unusual for me given my athletic participation. We waited until I was done the course of antibiotics and checked it again. It was still high and he wanted to find out why. Blood work showed some problem with myand he had me have an . It showed one kidney blocked. At that point he referred me to a and that is what ultimately led to my diagnosis. By the time I went to the University of Michigan for treatment I was diagnosed T3. After neoadjuvant and a with an post-op pathology showed one with cells. I then participated in a for the drug Sutent. That was, at this writing, almost two and a half years ago. As of today I am cancer free. So far so good.
Hindsight is always 20/20. I should have realized that frequency, burning, blood in the, frequent UTIs were not normal. I read about all these symptoms and, yes, what I read confirmed what I had been told by the various medical professionals I had seen. I also read that was rare and almost unheard of in women. My delay in diagnosis was due in part to the doctors I had seen but also my own fault for not being more proactive and asking for further examination of my symptoms. If there is one thing that I feel should be said to other women, it is to be your own advocate.