Helpful Links

RESOURCES AND SUPPORT
Information about bladder cancer, its symptoms and treatment options:

American Cancer Society
http://www.cancer.org/docroot/CRI/CRI_2x.asp?sitearea=LRN&dt=44

American Society for Clinical Oncology
http://www.cancer.net/patient/Cancer+Types/Bladder+Cancer

Bladder Cancer Patient Resource Guide
http://www.patientresource.com/Bladder_Cancer_Overview.aspx

Urology Care Foundation (The Official Foundation of the American Urological Association)
http://www.urologyhealth.org/

National Cancer Institute
http://www.cancer.gov/cancertopics/types/bladder

National Comprehensive Cancer Network
http://www.nccn.com/

H.E.A.L Well Nutrition Guide
http://meals-to-heal.com/nutrition-guide/

Bladder Cancer Webcafe
http://www.blcwebcafe.org/

The Johns Hopkins Greenberg Bladder Cancer Institute
https://youtu.be/XmVbC918ocE          https://youtu.be/z_DX1YciZPo

American Physical Therapy Association
(Pelvic floor physical therapy – search under “Women’s health”. Men can use this too but need to ask if the practitioner also treats men.)
http://www.apta.org/apta/findapt/index.aspx?navID=10737422525

Wound Ostomy Continence Nurses Society
http://www.wocn.org/


Support Services for Cancer Survivors:

Cancer Care
http://www.cancercare.org/

Cancer Support Community
http://www.cancersupportcommunity.org/

Bladder Cancer Canada
http://www.bladdercancercanada.org

Firefighters Cancer Support Network
http://www.fcsn.net/

The Livestrong Foundation
http://www.livestrong.org/

National Coalition for Cancer Survivorship
http://www.canceradvocacy.org/

Patient Advocate Foundation
http://www.patientadvocate.org/ 

Resource Guide for College Students Living with Chronic Health Issues
http://www.onlinecolleges.net/for-students/chronic-health-issues/

Smith Farm Center for Healing and the Arts
http://www.smithfarm.com/

United Ostomy Associations of America, Inc.
www.uoaa.org

National Cancer Institute Office of Cancer Survivorship
http://cancercontrol.cancer.gov/ocs/

Recommended Reading:
AfterShock—What To Do When the Doctor Gives You – or Someone You Love—a Devastating Diagnosis, Jessie Gruman, PhD., 2007

Back To Life: A Bladder Cancer Journey,  Frank Sadowski, 2015

Bladder Cancer: A Resource Guide for Patients and Their Families 1st Edition, Gary N. Duntez M.D., 2014

Medifocus Guidebook on: Bladder Cancer, 2014

Johns Hopkins Patients’ Guide to Bladder Cancer, 1st Edition, Mark L. Gonzalgo, MD PhD, 2011

The Cleveland Clinic Guide to Bladder Cancer (Cleveland Clinic Guides),Derek Raghava M.D, 2010

The Guide to Living with Bladder Cancer, Mark P. Schoenberg, M.D., 2000

The Total Cancer Wellness Guide; Reclaiming Your Life After Diagnosis, The Wellness Community, 2012

We Call Our Stoma “Sparky” – Survival tips for those who care for ileal conduit-ers, Wendy K. Shelton, 2015, Click here to view a copy.

100 Questions & Answers About Bladder Cancer, Pamela Ellsworth, MD., Brett Carswell, M.D., 2011

 

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