BCAN's Patient Handbook - Bladder Cancer Basics for the Newly Diagnosed



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The Bladder Cancer Advocacy Network (BCAN) is proud to announce that we have been designated a Marine Corps Marathon (MCM) Charity Partner! BCAN has been allocated 25 guaranteed entries for the 38th Annual Marine Corps Marathon to be held on October 27, 2013; an event that sold out in 2 hours and 41 minutes in 2012.
  • We are looking at building “Team BCAN” to not only run in the event and raise awareness for bladder cancer but to raise needed funds for fostering research and patient education. According to the Marine Corps Marathon, there is not a required qualifying time to participate in the event, but all runners should maintain at least a 14 minute mile pace. In order to become a member of “Team BCAN” and officially have a slot in this year’s race, you must be registered through BCAN.
  • No federal or Marine Corps endorsement is implied.
  • If you are interested in becoming a member of BCAN’s team or have any questions, please contact Larry Rzepka, BCAN’s Executive Director, at lrzepka@bcan.org.
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    Veronica
    How many times have you heard or seen “blood in the urine” as a warning sign of possible cancer? I’d heard it many, many times. So, at the age of 34, when there was blood in my urine, I called my doctor immediately. His nurse called me back and said that the doctor thought it was just a result of my frequent bladder infections. I instinctively knew better. I changed doctors and was advised by him to see a urologist.

    There are certain experiences in our lives that we can recall in detail. At the conclusion of that first cystoscopy, the doctor came to my side and said he’d found a tumor. I asked if it was malignant. He replied, “They nearly always are.” My life changed forever that day. I was a single mom with an eleven-year-old son. The only thing I could think of was dying before he reached the age of 18. I’ll never forget the details of that experience.

    I underwent a transurethral resection (TUR) and received confirmation shortly afterward that the tumor was malignant. After the surgery I followed the doctor’s instructions to the letter, except for one. I never missed a cystoscopy or an intravenous pylogram (IVP). I even sought a second opinion, and I read everything I could get my hands on regarding bladder cancer. And what’s the one instruction from my doctor that I ignored? To quit smoking. I tried many times, unsuccessfully. Then, in 1996 during my annual cysto the doctor removed a small recurrence. I quite smoking immediately and since then have been “clean.”

    I’ll soon be 61 and my son will be 38. I feel blessed that I had hematuria, and I’m glad that I followed my second doctor’s recommendation to see a urologist. I’ve been around to see my son grow into a fine man, to enjoy my grandson, and to enjoy life each day. However, I never take those days for granted.

    Cancer changes your life forever.