BCAN's Patient Handbook - Bladder Cancer Basics for the Newly Diagnosed



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The Bladder Cancer Advocacy Network (BCAN) is proud to announce that we have been designated a Marine Corps Marathon (MCM) Charity Partner! BCAN has been allocated 25 guaranteed entries for the 38th Annual Marine Corps Marathon to be held on October 27, 2013; an event that sold out in 2 hours and 41 minutes in 2012.
  • We are looking at building “Team BCAN” to not only run in the event and raise awareness for bladder cancer but to raise needed funds for fostering research and patient education. According to the Marine Corps Marathon, there is not a required qualifying time to participate in the event, but all runners should maintain at least a 14 minute mile pace. In order to become a member of “Team BCAN” and officially have a slot in this year’s race, you must be registered through BCAN.
  • No federal or Marine Corps endorsement is implied.
  • If you are interested in becoming a member of BCAN’s team or have any questions, please contact Larry Rzepka, BCAN’s Executive Director, at lrzepka@bcan.org.
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    Diana
    Following a much needed vacation just prior to my 59th birthday, I noticed little brown flakes in the toilet. At first thought maybe it was some rust peeling from the toilet tank. However, after about 3 weeks, when I began spotting and the vaginal irritation I had experienced upon returning from vacation remained, I decided it was time see my OB/GYN. She examined me and asked if the spotting was vaginal or coming from my urinary tract. I told her the truth: I didn’t know and I had no way of telling.

    She treated me for both a yeast infection and a urinary tract infection. The medication didn’t relieve the symptoms but since I was never in serious pain and since the doctor hadn’t seemed worried, I did not believe there was anything seriously amiss. It was not until a month later, when those little flakes in the toilet transformed into a frightening red deluge, that I called the doctor and insisted that something was really wrong. She sent me in for an ultra sound; then called to tell me that I had polyps on my bladder. I realized I was in trouble. Never, in my wildest dreams did I think I was headed for major life changing surgery.

    I made an emergency appointment with a urologist. He went over the results of a second ultrasound and told me that these tumors meant I have to have my bladder taken out. I was dumbfounded.On January 28, 2006, five months after my first symptoms, I had a radical cysectomy. While some cancer cells had penetrated to the outside of my bladder wall, there was no evidence of cancer in any of my nodes. My doctor said I did not need chemotherapy.

    Recovery from the surgery had its ups and downs, but mostly up. Bladder cancer is a serious disease and success is judged in annual increments. A year following the surgery, my life was pretty much back to normal. I hike on week-ends, work part-time, travel for fun and party when I have the opportunity.