BCAN's Patient Handbook - Bladder Cancer Basics for the Newly Diagnosed



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The Bladder Cancer Advocacy Network (BCAN) is proud to announce that we have been designated a Marine Corps Marathon (MCM) Charity Partner! BCAN has been allocated 25 guaranteed entries for the 38th Annual Marine Corps Marathon to be held on October 27, 2013; an event that sold out in 2 hours and 41 minutes in 2012.
  • We are looking at building “Team BCAN” to not only run in the event and raise awareness for bladder cancer but to raise needed funds for fostering research and patient education. According to the Marine Corps Marathon, there is not a required qualifying time to participate in the event, but all runners should maintain at least a 14 minute mile pace. In order to become a member of “Team BCAN” and officially have a slot in this year’s race, you must be registered through BCAN.
  • No federal or Marine Corps endorsement is implied.
  • If you are interested in becoming a member of BCAN’s team or have any questions, please contact Larry Rzepka, BCAN’s Executive Director, at lrzepka@bcan.org.
  • is-angela-lg.jpg
    Angela
    My journey with bladder cancer began in November 2005 with common symptoms for a UTI (urgency, back pain, etc.). I was placed on an antibiotic, but my symptoms were not relieved. Eventually, the symptoms went away but then reappeared in February when I began having painless gross hematuria in my urine. Because it was painless and inconvenient to go to the doctor, I ignored it.

    I researched gross hematuria on the web, and while I saw bladder cancer listed as a cause, I disregarded it since I didn’t have any of the risk factors. After a month, I finally went to my primary care provider who referred me to a urologist.

    I was diagnosed with bladder cancer in April 2006 and had three T1G3 tumors removed. Due to the grade and stage of my disease, it was concluded I would have the best chance of survival and quality of life via radical cystectomy. My surgery was June 13, 2006 and I now have a neobladder. My original bladder was also found to have CIS upon removal.

    Since surgery, I have enjoyed a wonderful quality of life and feel the radical cystectomy provided the best option for me and my family. I have experienced some hypercontinence, but no complications otherwise, and am looking forward to spending a long, healthy life with my husband and two children.