BCAN's Patient Handbook - Bladder Cancer Basics for the Newly Diagnosed



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Join The Online Bladder Cancer Support Community



The Bladder Cancer Advocacy Network (BCAN) is proud to announce that we have been designated a Marine Corps Marathon (MCM) Charity Partner! BCAN has been allocated 25 guaranteed entries for the 38th Annual Marine Corps Marathon to be held on October 27, 2013; an event that sold out in 2 hours and 41 minutes in 2012.
  • We are looking at building “Team BCAN” to not only run in the event and raise awareness for bladder cancer but to raise needed funds for fostering research and patient education. According to the Marine Corps Marathon, there is not a required qualifying time to participate in the event, but all runners should maintain at least a 14 minute mile pace. In order to become a member of “Team BCAN” and officially have a slot in this year’s race, you must be registered through BCAN.
  • No federal or Marine Corps endorsement is implied.
  • If you are interested in becoming a member of BCAN’s team or have any questions, please contact Larry Rzepka, BCAN’s Executive Director, at lrzepka@bcan.org.
  • Bladder Cancer Support Groups

    Online Support Community

    The bladder cancer online support community is available 24 hours a day. Over 5,500 bladder cancer survivors, caregivers, family members, and many others support each other through the different stages in their journey with bladder cancer.

    To participate in the online support community, click on the big orange button above. You will be asked to register but registration is free and you are welcome to provide as little or as much information as you wish. Requiring people who view the site to register gives more privacy to members.

    A tip for new users: Once you are registered & signed in, if you ever get lost, just click on “My Groups” at the very top and then click on “Bladder Cancer Advocacy Network Support Community”

    Additionally there is a Monthly Virtual Support Group which is open to all being provided by the Memorial Sloan-Kettering Cancer Center. If you are interested in participating, contact VirtualGroups@MSKCC.org

    In-Person Support Groups

    In-Person Bladder Cancer Support Groups are listed by state (Canadian group at the end of the list)

    CALIFORNIA

    Los Angeles

    Bladder Cancer Support Group
    The USC Norris Cancer Center
    Meets 4th Tuesday of each month at 6:00-7:30 p.m.
    USC Norris Lobby Conference Room1441
    Eastlake Avenue, Los Angeles
    Contact Katrina dela Cruz at 323-442-8301 or Maddy Kerber at madelyn.kerber@health.usc.edu

    Rancho Mirage

    Bladder Cancer Support Group
    4th Thursday of every month from 2:00 PM to 3:30 PM
    Eisenhower Lucy Curci Cancer Center
    39000 Bob Hope Dr.
    Rancho Mirage, CA 92270
    Call 760-834-3798 for Registration & Information
    Facilitators:  Barbara Bigelow, RN, ACON & Alison Mayer Sachs, MSW, OSW-C

    San Francisco

    Bladder Cancer Education and Support Group
    University of California San Francisco Comprehensive Cancer Center
    Meets 1st Thursday of each month at 5:30-7:00 p.m.
    Mt. Zion Campus
    1600 Divisadero, Conference Room H3906, San Francisco
    Contact Imelda Tenggara-Hunter at itenggara@urology.ucsf.edu or 415-353-7348

    Stanford

    Urology Oncology Support Group
    This is a combined bladder, kidney and prostate support group
    Meets 4th Tuesday of the month
    At Stanford Cancer Center, 875 Blake Wilbur Dr, Palo Alto, CA
    2nd Floor Conference Rooms CC2103-2104-2105
    Parking passes are provided.

    The group is led by Melissa Viatori, NP
    For more information and to Register to attend call 650-724-8372; Email geoemig@stanford.edu

    San Diego/North County

    This is a new support group
    For more information call Karen Gross at 909-856-1807 or gardenerca@gmail.com

    COLORADO

    Denver

    Bladder Cancer Support Group
    Urology Center of Colorado
    Meets 4th Tuesday of each month at 12 Noon and 6 p.m.
    2777 Mile High Stadium Circle
    3rd floor conference room
    Denver, CO 80211
    Contact: Martha Ruschival RN, BSN at 303-825-8822 or mruschival@TUCC.com

    CONNECTICUT

    Farmington

    Bladder Cancer Support Group
    Open to all – this group is not limited to UCONN patients
    Meets the first Saturday of each month from 3PM to 4PM
    At the Food Court at the rear of the UCONN Health Center
    263 Farmington Avenue, Farmington, CT 06030
    For more information contact: Pamela Nixon at psnixon@uchc.edu or 860-679-7820

    Hartford/Glastonbury

    Bladder Cancer Support Group
    Meets quarterly beginning June 6th 6:30 to 8:00PM
    Hartford Hospital, Tallwood Urology & Kidney Institute, Community Education Room, Ste. C
    Gateway Medical Park, #300-300 Western Blvd., Glastonbury (parking is free)
    “Understanding Bladder Cancer” – by a physician, a patient and a care giver
    To register to attend call 860-545-1888 or 1-800-545-7664
    For more information contact Jan Ruderman at 860-817-5300
    Open to all – this group is not limited to Hartford Hospital patients

    FLORIDA

    Estero/Fort Myers

    SWFL Bladder Cancer Support Group
    Meetings take place each month alternatively Sunday & Wednesday afternoons.
    Contact Karen Godfrey at 239-992-4809 or kgod@comcast.net

    ILLINOIS

    Chicago

    Bladder Cancer Networking Group
    Gilda’s Club Chicago and BCAN
    Meets 4th Wednesday of the month at 6-7:30 p.m.
    537 N. Wells Street, Chicago
    The group  is facilitated by Sandy Hiehl, RN and Josephine Silvestre, RN
    Contact 312-464-9900
    http://www.gildasclubchicago.org/

    Loyola University Maywood Campus
    Meets 2nd Tuesday each month at 7 p.m.
    “Great Diversions” is for bladder cancer patients that have had continent diversions (neobladders or catheterizable [Indiana] pouches)
    Cardinal Bernadin Cancer Center Auditorium
    2160 S. First Avenue, Maywood, IL
    Contact Ginger Lewis 708-216-5112 or glewis@lumc.edu

    INDIANA

    Indianapolis

    A monthly networking group – The Wellness Community Indiana and BCAN
    The Wellness Community
    5150 W. 71st Street
    Indianapolis, IN 46268
    Facilitator – Jim Bailey, bladder cancer survivor
    Contact The Wellness Community at 317-257-1505

    MARYLAND

    Baltimore

    Bladder Cancer Support Group (primarily for pre- and post-op cystectomy patients)
    Brady Urological Institute, Johns Hopkins Medicine
    Meets every other month on the first Thursday at 1:30pm
    Johns Hopkins Hospital, Baltimore
    Contact Joanne Walker at 410-955-5367 or jwalker@jhmi.edu

    Bethesda – Washington DC Metro Area

    Support group meets 3rd Thursday each month from 6-8PM
    Hope Connections
    Beaumont House at FASEB, 9650 Rockville Pike, Bethesda, MD 20814
    Contact:  Ben Wokas at info@hopeconnectionsforcancer.org, 301-493-5002

    MICHIGAN

    Ann Arbor

    Bladder Cancer Support Group
    University of Michigan Comprehensive Cancer Center and Dept. of Urology
    The sessions are free and no reservation is necessary
    2013 Meetings:  Jan 20; Mar 17; May 19; July 14; Sept 15; Nov 17
    Meets on Sundays 1:00-2:30 p.m.
    University of Michigan Main Hospital, Ann Arbor
    Meetings and parking are free, no reservation is necessary
    For information contact
    Julie Derossett at 734-647-8903 or julderos@med.umich.edu
    Michele Vogo at 734-615-6662 or mvigo@umich.edu

    Detroit

    Detroit Bladder Cancer Network (DBCN)
    Meets at either The Henry Ford Health System or Karmanos Cancer Center
    Quarterly meetings on the 3rd Thursday of every 3rd month; 4.30pm to 6.30pm
    2013  Jan 17 (Ford) April 18 (Karmanos) July 18 (Ford) Free parking at both locations
    Meetings are free and pre-registration is requested
    For program and location details
    Call 313-576-9700 (at Karmanos) or 313-916-8658 (at Ford Cancer Institute)

    NEW YORK

    Albany

    Capitol Region Bladder Cancer Awareness Group
    Meets the last Monday of each month at 6.30PM
    American Cancer Society Hope Club
    1 Penny lane, Latham, NY 12110
    For more information contact:
    Linda at lindor502@aol.com or 518-858-7499 or
    Denise at dimascio02@hotmail.com or 518-878-2936

    New York City

    Bladder Cancer: Challenges & Solutions: Open to all
    Memorial Sloan-Kettering Cancer Center
    Meets every month on the second Thursday at noon
    Contact Richard Glassman, LCSW at 646-422-4658 or glassmar@mskcc.org.
    Or contact Vashti Livingston at livingsv@mskcc.org.

    Rochester

    Meets at The James Wilmot Cancer Center at Strong Memorial Hospital
    601 Elmwood Avenue, Rochester, NY 14642
    The group meets from 5.30pm to 6.30 pm every fourth Wednesday in January, March, May, July, September, October
    Facilitator – Jackie Bill, Social Work Dept., The James Wilmot Cancer Center
    For more details contact  Jackie at 585-273-2888 or Jacqueline_bill@urmc.rochester.edu

    NORTH CAROLINA

    Chapel Hill

    Triangle Bladder Cancer Support Group
    2nd Tuesday of every month
    UNC Carolina Point Oncology
    6013 Farrington Rd, Suite 201
    Chapel Hill, NC  27517
    Contact: David Langham 919-943-0589 or trianglebcs@gmail.com
    http://trianglebcs.org

    Charlotte

    Bladder Cancer Support Group
    Meets 2nd Tuesday each month: 2.30pm to 4.00pm
    Levine Cancer Institute
    1021 Morehead Medical Drive, 2nd Floor
    Charlotte, NC 28204
    Contact Julie Hill at 980-442-2006 or Julie.M.Hill@carolinashealthcare.org

    OREGON

    Springfield

    Bladder Cancer Support Group
    3rd Wednesday of every month
    Oregon Urology Institute-Radiation Center
    1457 G Street
    Springfield, OR 97477
    Contact: Stephanie Kerns 541-284-5508 or stephanie@oregonurology.com

    PENNSYLVANIA

    Pittsburgh

    Bladder Cancer Support Group
    Meetings held the first Wednesday of each month, 6:30 – 8:00 PM
    The Hillman Cancer Center
    5115 Center Avenue
    Cooperman Conference Room A
    Pittsburgh, PA 15232
    Facilitators:  Jeffrey R. Gingrich, MD & Kay Lowmaster, MSW, LCSW
    Call 412-605-3015 to register and for more information

    TEXAS

    Dallas

    Bladder Cancer Survivorship Support Group
    Open to patients/survivors and their families and loved ones
    For information contact Pat Pugsley 972-571-1281
    Email: bladdercancerdallas@gmail.com)

    Baylor University Medical Center
    Bladder-Kidney Cancer Education & Support Group
    Meets the 2nd Wednesday each month: Noon to 1.30PM (registration required)
    Group Room, Cvetko Patient Education Center, Baylor Sammons Cancer Center
    3410 Worth Avenue, Ste. 200, Dallas, TX 75246
    For information contact Polly Candela, Program Coordinator, Tel: 214-820-2608 or Email: polly.candela@baylorhealth.edu

    Houston

    Baylor College of Medicine
    Baylor Clinic
    6620 Main Street
    Houston, TX 77030
    Meeting Saturdays from 10:30 am to noon on May 7, July 23, September 10, and November 5
    For more information, contact Heather at heather.honore@va.gov

    Bladder Cancer Support Team
    The University of Texas
    M.D. Anderson Cancer Center
    1515 Holcombe Boulevard, Unit 1373
    Houston, TX  77030
    Meetings: Bi-monthly
    Contact: Thomas J. Touzel (ttouzel@mdanderson.org) or Jane Dinney (jdinney@mdanderson.org), 713-792-6388
    www.mdanderson.org/departments/bladdercansup/

    VIRGINIA

    Reston – Northern Virginia

    Bladder Cancer Support Group
    For pre- and post-radical cystectomy / neobladder patients
    The group meets the 2nd Monday of each month 6:30 to 7:30 pm
    The group does not meet during the summer months of June, July, August
    The Urology Group
    1860 Town Center Drive, Suite 150
    Reston, VA 20190
    Contact: Rhonda Golman at rgolman@lmgdoctors.com or 703-480-0220

    Virginia Beach

    Meets the last Thursday of alternate months from 6:30 – 7:30 p.m.
    2013 dates – March 28, May 30, July 25, and Sept 26.
    At Urology of Virginia, 225 Clearfield Avenue, Virginia Beach, VA  23462
    Meetings include a 30 minute presentation by a physician followed by Q & A’s with time to network; light refreshments provided. Meetings are open to all.
    For more information contact Lori Barnhart 757-452-3475 or Email: lbarnhart@urologyofva.net

    WISCONSIN

    Milwaukee

    Bladder Cancer Support Group
    4th Wednesday of the Month
    6:15 to 7:45 pm
    Clinical Conference Room L
    (1st floor of the Clinical Cancer Center)
    Clinical Cancer Center
    Froedtert Hospital and the Medical College Clinical Cancer Center
    9200 West Wisconsin Avenue
    Milwaukee, WI 53226
    Contact: Heidi Stark, BSN OCN at 414-805-0196

    CANADA

    Montreal

    Bladder Cancer Canada Support Group
    Jewish General Hospital Hope & Cope Wellness Centre
    4635 Cote Ste. Catherine Road (corner of Lavoie)
    Meets 3rd Wednesday of each month at 5:30-7:00 p.m
    The group is facilitated by Jaques Spilka who can be reached at 514-573-2462. For more information contact the Wellness Centre at 514-340-3616 or email jspilka@whatsnexx.com