BCAN's Patient Handbook - Bladder Cancer Basics for the Newly Diagnosed



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The Bladder Cancer Advocacy Network (BCAN) is proud to announce that we have been designated a Marine Corps Marathon (MCM) Charity Partner! BCAN has been allocated 25 guaranteed entries for the 38th Annual Marine Corps Marathon to be held on October 27, 2013; an event that sold out in 2 hours and 41 minutes in 2012.
  • We are looking at building “Team BCAN” to not only run in the event and raise awareness for bladder cancer but to raise needed funds for fostering research and patient education. According to the Marine Corps Marathon, there is not a required qualifying time to participate in the event, but all runners should maintain at least a 14 minute mile pace. In order to become a member of “Team BCAN” and officially have a slot in this year’s race, you must be registered through BCAN.
  • No federal or Marine Corps endorsement is implied.
  • If you are interested in becoming a member of BCAN’s team or have any questions, please contact Larry Rzepka, BCAN’s Executive Director, at lrzepka@bcan.org.
  • Inspiration
    There are over 500,000 bladder cancer survivors in the United States today. Each survivor has a unique story to tell of struggle and inspiration. Our hope is that these stories will help you find your own successful path to living with bladder cancer. We invite you to share your story with others who are newly diagnosed or searching for answers and inspiration.
    Submit your story here.

    Ron Stein
    Ron Stein – Diagnosed 2010

    Ron’s Story

    I was diagnosed in 2010 and in October that year (5 days after my 61st birthday), I had the
    radical cystectomy and Neobladder surgery.
    I was able to surf again 3 months later, primarily due to great advice from my doctors,
    nutritionist and the love, support and prayers from my family and friends. Prior, during
    and after the surgery, I diligently followed instructions from my doctors and health care
    specialist. Again, the support of family and friends assisted in my recovery.
    Upon reflection, it wasn’t easy, but it was well worth everything I went through. I thank
    God every day for this miracle of being able to have a Neobladder. I am grateful to all
    the doctors, nurses and hospital personnel who assisted me during my surgery/post-surgery
    time at UCLA Ronald Reagan Medical Center.
    It has been over 2 years now and I have been able to work, travel frequently, and live an active
    lifestyle that enabled me to surf over 100 times last year.
    I was diagnosed in 2010 and in October that year (5 days after my 61st birthday), I had the radical cystectomy and Neobladder surgery.

    I was able to surf again 3 months later, primarily due to great advice from my doctors, nutritionist and the love, support and prayers from my family and friends. Prior, during and after the surgery, I diligently followed instructions from my doctors and health care specialist. Again, the support of family and friends assisted in my recovery.

    Upon reflection, it wasn’t easy, but it was well worth everything I went through. I thank God every day for this miracle of being able to have a Neobladder. I am grateful to all the doctors, nurses and hospital personnel who assisted me during my surgery/post-surgery time at UCLA Ronald Reagan Medical Center.

    It has been over 2 years now and I have been able to work, travel frequently, and live an active lifestyle that enabled me to surf over 100 times last year.

    Ron’s Silver Lining
    I wake up each and every day …. Grateful. I am healthy and able to enjoy my marriage, children, grandchildren, friends and co-workers. I stop and smell the roses more often and want to be a mentor for people facing bladder cancer, especially RC and Neobladder surgery.

    Ron’s non-medical secret to survival
    Life is precious. Live every moment. Enjoy, sacrifice, love, laugh and pray. Learn as much as you can and surround yourself with positive people, family and friends. Trust someone to help you make informed and tough decisions. I pray God’s blessing on each and every one of you facing this decision.