Announcing Cancer Insurance Checklist: Guía de Cobertura Médica para Personas con Cáncer

February 4, 2014
by Alpha Lillstrom

As implementation of the health reform law (the Affordable Care Act) continues, the Cancer Support Community (CSC) is pleased to announce the launch of a Spanish language version of the successful resource, the Cancer Insurance Checklist. This easy-to-use guide is available to assist people with cancer, a history of cancer or at risk for cancer choose a health insurance plan.

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Making Bladder Cancer Research a Priority

January 16, 2014
by Monica Smith

As anyone with bladder cancer or in the research community will tell you, bladder cancer research is greatly underfunded. There have been no new significant advances in the disease in more than 20 years. With the leadership of our board and the generosity of BCAN donors, our research program has grown exponentially since 2010 when we awarded the first $25,000 grant.

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Article Highlights Future of Bladder Cancer Care in the USA

January 16, 2014
by Vanessa Hoffman

An article was published recently in the journal Nature titled “The future of bladder cancer care in the USA.” The authors discuss how despite the large number of people diagnosed with bladder cancer each year and the high costs of treatment and management for this disease, there is a lack of awareness about bladder cancer as a public health concern and lack of funding for research.

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Congratulations to Troop 2!

January 3, 2014
by Diane Quale

When my late husband and I started BCAN in 2005, we never imagined the strong community that now works together to cultivate a community of hope and support for people impacted by bladder cancer. I am so proud to be associated with the hundreds of volunteers across the country who devote their time, energy and resources to support BCAN’s mission.

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YOU are BCAN

December 24, 2013
by Monica Smith

On December 26th, while many will be enjoying time off or the sales at the mall, the young men of Troop 2 in Summerville, South Carolina will start a 51 mile hike to support BCAN. Led by Scout Master Glenn Justis, the group has trained over 100 hours to complete the hike in honor of Glenn’s mom, Beverly Justis.

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Health Insurance Deadline on Dec. 23

December 19, 2013
by Vanessa Hoffman

The first major deadline for the Affordable Care Act is quickly approaching. Monday, December 23 is the deadline to enroll for health insurance coverage if you want your insurance to take effect on January 1. Some states may have extended the deadline. Take a look at the Cancer Insurance Checklist to help you compare different plans.

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Clinical Trials Matter

December 16, 2013
by Diane Quale

Not much has changed in bladder cancer prognosis and treatment options in the last two decades. Many people call the BCAN office wanting to know when there will be new drugs available for treating bladder cancer. Researchers and clinicians are continuously working on improving and expanding treatment options, and clinical trials are a key part of this process.

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Access to Blue Light Cystoscopy

December 5, 2013
by Monica Smith

Over the past few days, you may have heard about the issue regarding reimbursement of blue light cystoscopy. As all of you know, there are very few treatments and innovations for bladder cancer. It is BCAN’s position that everyone should have equal access to all treatments, tests and innovations that have been approved by the FDA.

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The Passing of a Friend

December 2, 2013
by Diane Quale

Joseph Lake McLaurin of Oxford, NC passed away on Wednesday, November 27th. Joe was President of the BCAN Triangle Chapter and was an active member of the Triangle Bladder Cancer Support Group.

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Finding care after ostomy surgery – Do you feel home alone?

December 2, 2013
by Joanna Burgess

Joanna Burgess, CWOCN, was diagnosed with bladder cancer in 1965 at the age of three. After surgery for an ostomy (ileal conduit), radiation and chemotherapy – she describes being discharged from the hospital with her father and one small brown bag of ostomy pouches. She states “We were given no instructions; there were no ostomy nurses and my father felt completely abandoned by the medical community”. Joanna offers tips for the new ostomy patient. She currently works as an ostomy nurse in an acute care facility and councils many patients online and in her community.

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