YOU are BCAN

December 24, 2013
by Monica Smith

On December 26th, while many will be enjoying time off or the sales at the mall, the young men of Troop 2 in Summerville, South Carolina will start a 51 mile hike to support BCAN. Led by Scout Master Glenn Justis, the group has trained over 100 hours to complete the hike in honor of Glenn’s mom, Beverly Justis.

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Clinical Trials Matter

December 16, 2013
by Diane Quale

Not much has changed in bladder cancer prognosis and treatment options in the last two decades. Many people call the BCAN office wanting to know when there will be new drugs available for treating bladder cancer. Researchers and clinicians are continuously working on improving and expanding treatment options, and clinical trials are a key part of this process.

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Access to Blue Light Cystoscopy

December 5, 2013
by Monica Smith

Over the past few days, you may have heard about the issue regarding reimbursement of blue light cystoscopy. As all of you know, there are very few treatments and innovations for bladder cancer. It is BCAN’s position that everyone should have equal access to all treatments, tests and innovations that have been approved by the FDA.

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The Passing of a Friend

December 2, 2013
by Diane Quale

Joseph Lake McLaurin of Oxford, NC passed away on Wednesday, November 27th. Joe was President of the BCAN Triangle Chapter and was an active member of the Triangle Bladder Cancer Support Group.

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Finding care after ostomy surgery – Do you feel home alone?

December 2, 2013
by Joanna Burgess

Joanna Burgess, CWOCN, was diagnosed with bladder cancer in 1965 at the age of three. After surgery for an ostomy (ileal conduit), radiation and chemotherapy – she describes being discharged from the hospital with her father and one small brown bag of ostomy pouches. She states “We were given no instructions; there were no ostomy nurses and my father felt completely abandoned by the medical community”. Joanna offers tips for the new ostomy patient. She currently works as an ostomy nurse in an acute care facility and councils many patients online and in her community.

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Together, We Are One Powerful Voice

November 18, 2013
by Monica Smith

Last Wednesday, I had the pleasure of participating in BCAN’s first Hill Day. Six dedicated bladder cancer advocates representing Illinois, Alabama, New Jersey, Pennsylvania, Virginia and Maryland met with their representatives to advance bladder cancer awareness. Our key platform is passing a resolution to recognize May as Bladder Cancer Awareness Month.

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Introducing “Conversations About Bladder Cancer”

November 11, 2013
by Diane Quale

Did you ever have a question for your doctor that you were too intimidated to ask? Or maybe asked and didn’t have confidence in the answer? That’s why BCAN is launching “Conversations About Bladder Cancer”, an interactive dialogue with bladder cancer experts, asking the questions on the issues that matter most to our community of survivors and caregivers.

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Thank a Nurse – It’s Urologic Nurses Week

November 4, 2013
by Monica Smith

Thank a Nurse – It’s Urologic Nurses Week! This week – November 1 – 7 – is Urologic Nurses and Associates Week. As those with bladder cancer know, nurses play a very important role in their treatment and care. Nurses are the first line of communication to educate patients, listen to their concerns, and help when there is a medical emergency.

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Surviving and Thriving

October 29, 2013
by Diane Quale

After initial bladder cancer treatment, people often talk about adjusting to a “new normal”. This could mean getting used to visiting your urologist every few months and checking if the cancer has returned. It could also mean coming home after a life-changing surgery where your bladder has been removed and you have a newly constructed urinary system. Regardless of your specific diagnosis, being a person or being close to a person living with bladder cancer changes your life. When my late husband, John Quale was diagnosed with bladder cancer in 2000, we found patient information and treatment options to be…

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BCAN Welcomes New Executive Director; Launches New Website

September 5, 2013
by Diane Quale

Welcome to the new BCAN blog ! This is just one of many new  ways that we are reaching out to the greater bladder cancer community and where you will find a more personal perspective of the latest whos, whats, whens and wheres of BCAN. I’m Diane Zipursky Quale, the President and co-founder of the Bladder Cancer Advocacy Network (BCAN). My late husband, John Quale, and I established BCAN in 2005, five years   after he was diagnosed with bladder cancer. At the time, there was very little information about bladder cancer available to the public, and even fewer people willing to…

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