Advocacy Issue – Blue Light Cystoscopy

March 3, 2015
by Monica Smith

You may have read our posting with an update on the issue regarding reimbursement of blue light cystoscopy. As all of you know, there are very few treatments and innovations for bladder cancer. It is BCAN’s position that everyone should have equal access to all treatments, tests and innovations that have been approved by the FDA.

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Moving Towards Improved Patient-Centered Research:  Perspective from a John Quale Travel Fellow

February 24, 2015
by Ken Nepple, MD

As an early investigator trying to have an impact in bladder cancer, I received a John Quale Travel Fellowship to attend the 2011 BCAN Think Tank Meeting. This award has honestly had a profound impact on my personal understanding of bladder cancer and also provided me with the opportunity to advance my career. For me, this impact has been best personified by two concepts: 1. Ask important questions and 2. Work with smart and motivated people.

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Guest Blog: “Wait, you guys do surgery here? I thought you only did research!”

February 10, 2015
by Piyush Agarwal, MD

This is a common reaction I get from patients during consultations for urothelial cancer management and treatment. Many patients are aware that the National Institutes of Health (NIH) is the largest biomedical research institution in the world. However, most of these patients are unaware of the nation’s largest research hospital located within the NIH’s Clinical Center in Building 10 in Bethesda, Maryland.

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Good Listeners Needed for the BCAN Connection Volunteer Program

January 20, 2015
by Jeanne Mahoney

Are you a good listener? Are you patient and compassionate? Do you have a phone? The Bladder Cancer Advocacy Network (BCAN) needs you for the BCAN Connection Program! BCAN Connection is looking for volunteers to answer calls to the BCAN Connection Line, an information and referral service for newly diagnosed bladder cancer patients, caregivers and survivors.

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BCAN Partners with Vanderbilt to Host “Living with Bladder Cancer” Event

January 16, 2015
by Guest Blog

Recently, Vanderbilt-Ingram Cancer Center partnered with the Bladder Cancer Advocacy Network (BCAN) to host, “Living with Bladder Cancer.” This half-day educational event was an opportunity for patients, caregivers and family members to hear from medical experts as well as to network with others impacted by bladder cancer.

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We want you! To tell us what to research

January 8, 2015
by Angela Smith, MD, MS

This year we’re launching a new project called, “Engaging Patients in Bladder Cancer Research Prioritization” to make sure the patient voice is heard in determining important bladder cancer research topics. Our goal is to engage bladder cancer patients in the research process in a meaningful way. We are aiming to recruit patients and caregivers to join the Patient Survey Network (PSN).

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BCAN Marks 10 Years

January 5, 2015
by Diane Quale

I am always happy to welcome in the new year, and 2015 is of special significance as it marks BCAN’s 10th anniversary. BCAN got started 10 years ago because my late husband John and I had a simple idea: something needed to be done to raise awareness about bladder cancer and improve the lives of the thousands of people impacted by the disease.

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Advocacy for Blue Light Cystoscopy Moves Ahead

December 9, 2014
by Monica Smith

We are pleased to report that United States Senator Robert Menendez of New Jersey yesterday introduced legislation to help address the issue and correct the Medicare & Medicaid Services (CMS) policy for reimbursing hospitals for the drug Cysview.

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Reverse the Odds – New Mobile App Game Advances Science

November 20, 2014
by Annika Bergstrom

Dr. Anne Kiltie at the University of Oxford has been working on developing an engaging mobile game called “Reverse the Odds” where players can engage in critical thinking by playing a fun minion-switching puzzle, and also by analyzing real cancer slides. This pioneering project falls into a realm of research referred to as “Citizen Science”, where the public is trusted with providing the data for the scientists.

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