As many of you may know, public awareness ofis terribly low. When patients are diagnosed, they have little knowledge of the disease which greatly impacts treatment decisions. BCAN, along with the support of many dedicated volunteers and patient advocates have been working to change this. Our first step is working with Congress to have May recognized as National Awareness Month.
Today, April 3rd, Rep. Cartwright of PA and Rep. Rogers of MI will introduce this important house resolution to recognize May asAwareness Month. We are grateful for their leadership and dedication to this issue. We’d also like to thank the resolution’s co-sponsors including Rep. McGovern of MA and Rep. Cohen of TN. Many organizations including the American Cancer Society Cancer Action Network, Urology Care Foundation, American Urological Association, Veterans Health Council, Vietnam Veterans of America, Men’s Health Network, Society for Women’s Health Research, Malecare Cancer Support, National LGBT Cancer Project – Out With Cancer, and Peyronie’s Disease Advocates are providing their support for this resolution.
Once the resolution is introduced today, it will be assigned a number. We will need your help to contact your representative and tell them that recognition ofmatters. For the 500,000 people living with the disease, the 73,000 people who will be newly diagnosed, and the (too) many people we have lost. We will provide details soon.
On the local level, Marge Coffin from the Lehigh Valley Central PA chapter will have a state resolution introduced in the chamber on April 7th. Thank you to Marge and her team in Pennsylvania for their ongoing commitment and advocacy.
Whether we are successful in this resolution, as far as we are concerned at theAdvocacy Network, MAY IS AWARENESS MONTH! In the coming weeks, we will post events, educational materials and patient stories to help move this disease into the public consciousness.