BCAN's Patient Handbook - Bladder Cancer Basics for the Newly Diagnosed



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The Bladder Cancer Advocacy Network (BCAN) is proud to announce that we have been designated a Marine Corps Marathon (MCM) Charity Partner! BCAN has been allocated 25 guaranteed entries for the 38th Annual Marine Corps Marathon to be held on October 27, 2013; an event that sold out in 2 hours and 41 minutes in 2012.
  • We are looking at building “Team BCAN” to not only run in the event and raise awareness for bladder cancer but to raise needed funds for fostering research and patient education. According to the Marine Corps Marathon, there is not a required qualifying time to participate in the event, but all runners should maintain at least a 14 minute mile pace. In order to become a member of “Team BCAN” and officially have a slot in this year’s race, you must be registered through BCAN.
  • No federal or Marine Corps endorsement is implied.
  • If you are interested in becoming a member of BCAN’s team or have any questions, please contact Larry Rzepka, BCAN’s Executive Director, at lrzepka@bcan.org.
  • INFORMATION AND SUPPORT FOR THE BLADDER CANCER COMMUNITY

    BCAN Website: www.bcan.org – One of the most comprehensive collections of bladder cancer information on the web, BCAN’s website averages 2,000 visitors weekly.  Our website includes:

    • Newsletter – E-mailed quarterly newsletters and periodic alerts with bladder cancer information to over 10,000 people.

    • Clinical Trial Matching Tool – Over 250 people registered for this service to obtain specific information about participating in bladder cancer clinical trials.

    Online Community – Now with almost 6,000 members from all 50 states, survivors and their loved ones have posted thousands of different discussions supporting each other on their bladder cancer journeys.

    Patient Calls and E-mails for Information, Referrals, and Support – Staff provided vital information and support to over 200 survivors and caregivers via telephone and e-mail in 2012.

    Patient HandbookBladder Cancer Basics for the Newly Diagnosed, a comprehensive patient handbook developed with BCAN’s Scientific Advisory Board, was updated in January 2013. BCAN has also just released a Spanish version of the handbook. BCAN has distributed over 100,000 handbooks to survivors, caregivers, urology practices and cancer centers across the United States. The handbook is also available for download from BCAN’s website. It was downloaded over 2,000 times in 2012.

    Local Bladder Cancer Support Groups - BCAN staff, along with local volunteers, facilitated the development of 29 support groups in 15 states and Canada.

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    RAISING AWARENESS OF BLADDER CANCER

    Bladder Cancer Walks – Bladder Cancer walks take place annually on the first Saturday in May across the United States. In 2012 BCAN had the second annual Walk for Bladder Cancer with over 5,000 walkers attending 60 walks in 30 states and raised over $270,000.

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    BLADDER CANCER RESEARCH AND ADVOCACY

    BCAN Young Investigator Award– BCAN has announced the availability of three research awards of $100,000 each, over a two-year period. BCAN’s Young Investigator Awards seek to fund those researchers who may be working in basic, translational, clinical, epidemiologic, bioengineering or any other scientific or research field, but are also working in a research environment capable of supporting transformational bladder cancer research.

    Bladder Cancer Think Tank –BCAN’s Think Tank has been held annually since 2006.  The meetings are designed to enhance collaboration among physicians, researchers, and patients who are dedicated to the prevention, diagnosis, and treatment of bladder cancer.

    Advocacy on Capitol Hill and at the National Cancer Institute (NCI) – BCAN partnered with the Cancer Leadership Council and One Voice Against Cancer to advocate on Capitol Hill and at NCI for research funds and health policies that provide improved treatment and services for cancer survivors.

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    OUTREACH TO PHYSICIANS ACROSS THE US

    Medical Outreach – Members of our growing volunteer network have personally spoken with over 1,900 urology practices and cancer centers in 48 states to distribute BCAN’s educational information to over 5,500 physicians.

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    ANNUAL REPORTS

    Click here to view our 2009-2010 Annual Report.

    Click here to view our 2008-2009 Annual Report.