Blue Light Cystoscopy Issue

As we’ve previously discussed in our posts, the lack of reimbursement for blue light cystoscopy has been a barrier to care for many bladder cancer patients.

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Reverse the Odds – New Mobile App Game Advances Science

Dr. Anne Kiltie at the University of Oxford has been working on developing an engaging mobile game called “Reverse the Odds” where players can engage in critical thinking by playing a fun minion-switching puzzle, and also by analyzing real cancer slides. This pioneering project falls into a realm of research referred to as “Citizen Science”, where the public is trusted with providing the data for the scientists.

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What’s New in Bladder Cancer

Today we release the summary proceedings from the 2014 Bladder Cancer Think Tank. In this summary you can read about the highlights from this incredible meeting that serves as an incubation center to support new ideas and collaboration to accelerate progress on diagnosing, treating, and improving quality of life for people impacted by bladder cancer.

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Advocacy: A Personal Perspective

On Thursday, September 18, 2014 hundreds of cancer survivors, family members and researchers met with their elected members of congress during “Rally for Medical Research Day”. The purpose of the rally was to encourage congressional members and staff to increase funding at the National Institutes of Health to support additional research to find a cure for cancer. We were honored to represent our father who is a bladder cancer survivor and the Bladder Cancer Advocacy Network (BCAN) on Capitol Hill for the day.

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Great Step Forward: Hopkins Greenberg Bladder Cancer Institute

The bladder cancer community took a great leap forward last week with the official launch of the Johns Hopkins Greenberg Bladder Cancer Institute. The mission of the Institute—the first of its kind in the world—is to develop new clinical strategies for combating bladder cancer through intensive, collaborative, and innovative research.

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DFW Chapter Hosts Bladder Cancer Education Event

The BCAN-DFW hosted a “Bladder Cancer Overview with Survivors Panel Q&A Session” on September 18 at the Cancer Support Community of North Texas (CSCNT) Clubhouse. After a brief welcome by Phyllis Yount, Director of the CSCNT, the event commenced with a presentation from its featured speaker, Dr. Ganesh V. Raj.

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Remembering Dad – A Daughter’s Tribute

About 75,000 people live in Kalamazoo, Michigan. That’s about the same number of folks that will be stricken with bladder cancer this year. 56,000 men will get this disease and more than 11,000 of them will die. My Dad did, after a valiant three-year battle.

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Unmet Needs of Bladder Cancer Survivors

The Icahn School of Medicine at Mount Sinai is launching the “Study on Unmet Needs of Bladder Cancer Survivors.”  The researchers at Mount Sinai are looking for input and feedback from bladder cancer survivors regarding their experience.  It is their hope that the study will identify barriers and challenges to better address the needs of those living with bladder cancer.  This is an opportunity for bladder cancer survivors to have their voice heard by participating in this important research study. This study is strictly confidential and is coordinated through Mount Sinai.  Those who wish to participate or have questions can use…

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BCAN Inspire Web Community: “Together, We Are Better.”

One year after my radical cystectomy, in November 2007, the BCAN Inspire web community was launched. Bladder cancer survivors, partners, caregivers, family, and friends finally had a place to get answers to the questions that I had asked; to ask other questions like them, no matter how personal; to share good news and bad; to offer tips and tricks that make life as a bladder cancer survivor easier and more complete; and to give and get comfort during difficult times.

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