YOU are BCAN

On December 26th, while many will be enjoying time off or the sales at the mall, the young men of Troop 2 in Summerville, South Carolina will start a 51 mile hike to support BCAN. Led by Scout Master Glenn Justis, the group has trained over 100 hours to complete the hike in honor of Glenn’s mom, Beverly Justis.

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Health Insurance Deadline on Dec. 23

The first major deadline for the Affordable Care Act is quickly approaching. Monday, December 23 is the deadline to enroll for health insurance coverage if you want your insurance to take effect on January 1. Some states may have extended the deadline. Take a look at the Cancer Insurance Checklist to help you compare different plans.

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Clinical Trials Matter

Not much has changed in bladder cancer prognosis and treatment options in the last two decades. Many people call the BCAN office wanting to know when there will be new drugs available for treating bladder cancer. Researchers and clinicians are continuously working on improving and expanding treatment options, and clinical trials are a key part of this process.

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Access to Blue Light Cystoscopy

Over the past few days, you may have heard about the issue regarding reimbursement of blue light cystoscopy. As all of you know, there are very few treatments and innovations for bladder cancer. It is BCAN’s position that everyone should have equal access to all treatments, tests and innovations that have been approved by the FDA.

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The Passing of a Friend

Joseph Lake McLaurin of Oxford, NC passed away on Wednesday, November 27th. Joe was President of the BCAN Triangle Chapter and was an active member of the Triangle Bladder Cancer Support Group.

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Finding care after ostomy surgery – Do you feel home alone?

Joanna Burgess, CWOCN, was diagnosed with bladder cancer in 1965 at the age of three. After surgery for an ostomy (ileal conduit), radiation and chemotherapy – she describes being discharged from the hospital with her father and one small brown bag of ostomy pouches. She states “We were given no instructions; there were no ostomy nurses and my father felt completely abandoned by the medical community”. Joanna offers tips for the new ostomy patient. She currently works as an ostomy nurse in an acute care facility and councils many patients online and in her community.

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November is National Caregivers Month

This is a time to thank all caregivers and show your support and gratitude for all they do. More and more Americans are caring for loved ones who are disabled, elderly, or ill. According to Women’s Health.gov, a caregiver is “anyone who provides help to another person in need.” According to Family Caregiver Alliance, there are as many as 65.7 million caregivers who make up 29% of the U.S. adult population providing care for someone who is ill, disabled, or elderly.

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FDA Releases Strategic Plan to Address Drug Shortages

In October the Food and Drug Administration (FDA) released a strategic plan to prevent and resolve drug shortages. Drug shortages are a major public health issue in the United States, denying the much needed treatment of certain drugs to patients.

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Together, We Are One Powerful Voice

Last Wednesday, I had the pleasure of participating in BCAN’s first Hill Day. Six dedicated bladder cancer advocates representing Illinois, Alabama, New Jersey, Pennsylvania, Virginia and Maryland met with their representatives to advance bladder cancer awareness. Our key platform is passing a resolution to recognize May as Bladder Cancer Awareness Month.

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Introducing “Conversations About Bladder Cancer”

Did you ever have a question for your doctor that you were too intimidated to ask? Or maybe asked and didn’t have confidence in the answer? That’s why BCAN is launching “Conversations About Bladder Cancer”, an interactive dialogue with bladder cancer experts, asking the questions on the issues that matter most to our community of survivors and caregivers.

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